This is Team Ranson's fourth year participating in the Tom Moore Team Hope Walk. I am proud to say that thanks to many of our family, friends and acquaintances Team Ranson has significantly impacted the success of the Tom Moore Team Hope Walk; I expect this year will be no different due to the ongoing support of so many of you. For those that don't already know (which I suspect are very few of you) my husband, Randy Ranson, was diagnosed with Huntington's Disease in July, 2015. For the next several weeks I extensively researched this disease pouring over websites into the early morning hours; I was obsessed with finding out all I could about Huntington's Disease. Suffice it to say that initially I didn't find much to be hopeful about. I finally stumbled upon the Huntington's Disease Society of America's website and discovered that exciting research was in the works. It was then I knew that I couldn't just sit back and wait for this disease to take my husband without a fight. I am also fighting for my boys as they are at risk of having inherited the mutated gene that causes Huntington's Disease. While perusing the HDSA website I discovered there was an annual Hope Walk in one of my favorite places on this earth, Boone NC. For me that was a sign that forming a team and helping to raise money for a cure would be my weapon of choice in this fight. People get this disease simply because they are conceived and are on the losing end of a "genetic coin flip". It is not a disease that evolves from bad lifestyle choices, bad diet, lack of exercise, drug abuse, alcohol abuse, etc. Woody Guthrie, one of America's most prolific songwriters died at the age of 55 from complications of Huntington's Disease. It is my understanding that he wrote the following verse during one of his many extended stays in an insane asylum (yes, that is where they used to put people with Huntington's Disease);
"The note of hope is the only note that can help us or save us from falling to the bottom of the heap of evolution, because, largely, about all a human being is, anyway, is just a hoping machine."
Let's keep the "hope" of Woody Guthrie, Randy Ranson, the family of Tom Moore and many others afflicted with and/or impacted by this demonic disease alive and well. Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the 'Support Us’ button at the top of this page.
Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•41 Centers of Excellence
•65 Social Workers
•160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Thank you for your support!