Thank you for visiting the 'Fighting for Deb' team fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
About 10 years ago our Mom, Cousin Suzi and Uncle Curt were all diagnosed with HD. Although it pains us to see the progression of this disease, and it broke us to lose Suzi (Sissy) it at the same time blesses our hearts to know that not one of them gave up. They were/are fighters against this ugly disease!! Every day we hope and pray for a cure. So please come out and support this walk on April 13th, 2019! I know my mom will be so proud to know people are still fighting to find a cure for Huntington's Disease.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family. Every Donation helps make a difference!
$1 Sends a Fast Facts Information Packet to a newly diagnosed HD patient.
$5 Provides a Law Enforcement Tool Kit to educate Law Enforcement Officials or First Responders about how to recognize HD and how to resolve potentially dangerous situations.
$50 Funds one monthly volunteer-led HD Caregiver support group.
$100 Supports a Social Worker-led HD Patient support group for one month.
$250 Allows an HD family of four to attend a local Education Conference.
$500 Pays a licensed Social Worker to cover a local HD Phone Helpline for one month.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•41 Centers of Excellence
•65 Social Workers
•160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.
Thank you for your support!