I'll never forget when mom first told me and my brother that she had Huntington's disease, back in 1993 when testing for the disease first became possible. There we were, sitting at the kitchen counter, when mom said she had a disease that would eventually kill her some 20-years or so down the road. We didn't react much then - when you're in your late teens, 20 years might as well be an eternity. And in that time, surely medical science would find a cure. Isn't that how it always works?
Mom became symptomatic over 10 years ago, right on schedule. She never complained, even as her twitches became stumbles, and her stumbles became falls. My father, brother, and I watched as she progressed to a walker, then a wheelchair, then eventually a bed. The vibrant, sweet, eternally kind and giving woman slowly became less a part of family gatherings as her speech was slowly robbed from her. Christmas music no longer played throughout the home during the holidays. No puzzles were laid out on tables in various stages of completeness.
On Tuesday, September 25th, 2017, mom finally lost her battle with Huntington's disease. A battle normally lasting 5-8 years mom took to over 10, a testament to her stubbornness and force of will. I'll never forget my last actual conversation with her, some four months prior. I got her to say my name, and that she loved me. She also acknowledged that, at long last, I was going to make her a grandmother a third time, finally to a child of my own.
Huntington's disease does more than take lives. It devastates families, and robs their futures together as well. My mom will never get to experience being a grandmother, watching her grandkids grow and experience the fruitfulness of their lives. My children, and those of my brother, will never get to experience my mom being the amazing grandmother she definitely would have been. My mom never gets to meet my wife, nor does my wife get to have a spectacular mother-in-law. If anybody deserved to be a mother-in-law and grandmother, it was my mom. One of the sweetest, most caring and loving person I've ever known.
I hope you'll join Team Lynn as we try to do everything we can to rid the world of Huntington's disease. You can join us at an event and participate, or support through a donation. All contributions go towards providing support for those still struggling against HD, and towards funding research for a cure. The world is less through the loss of my mother. Hopefully we can find and end to this terrible disease so other people's mothers, fathers, siblings, and children don't lose their fight as well.
Thank you in advance for your support, in the name of my mom, Lynn Waddington (4/22/50 - 9/26/17). I love you mom.