As many of you know, my dad was diagnosed with Huntington's Disease almost 3 years ago. His dad also had it and passed away from the disease when I was in college. In honor of my dad, our family will be walking in the Huntington's Disease Society of America Twin Cities Team Hope Walk & Fun Run on Saturday, August 4. This also happens to fall two days after my dads birthday, so we will also be hosting a picnic at my parents house after the walk to celebrate!
Huntington's is a genetic disorder that causes the progressive breakdown of nerve cells in the brain and has no cure. HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Yes, you read that correctly. I could also have the disease and if I do so could Talen, Cash and Sailor.
The Huntington’s Disease Society of America is a not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. HDSA provides help for today and hope for tomorrow for people with Huntington’s disease and their family. Since our family has already been affected by this disease and could continue to be affected, we want to make a difference and help raise money for this organization.
We would love for you to join us and help make a difference. If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page. Our goal is to raise $2,000 in honor of my dad!
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org.
Thank you for your support -- Rog, Sue, Eric, Sara, Talen, Cash & Sailor