Hope for Ally

I met Ally’s mother, a long time ago growing up in a small town in Western Illinois.  We sat in the back row of Mr. Meade’s accounting class.   I admired her upbeat personality even back then. 

She came to visit just weeks after my oldest son (Jake), was born.  She tells the story that that is when she decided she could be a mother.  It wasn’t long after that, Ally was born. 

Fast forward to 2004 – we were attending our 20 year high school reunion.  That was when we found out about HD and its devastating effects it can have on families.  Not only did Ally’s mom have it, but all 4 of her sisters as well. 

I still visit as often as I can; and Ally’s mom is smiling and positive.  She is truly an inspiration to anyone she meets.  This year - we are so excited to have Ally's mom with us as we walk and hope for a cure! 

We walk today for Ally – there is a 50/50 chance that she is carrying the gene for this disease.  We don’t yet know about Ally’s future; but we have HOPE. 

 

Thank you for visiting our Team fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.

The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family. 

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.

HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•21 Centers of Excellence
•40 Social Workers
•120 Support Groups

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.

Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page. 

Thank you for your support!

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