On Sunday May 20, 2018 TEAM SWEITZER will once again participate in the Huntington’s Disease TEAM HOPE WALK FOR A CURE in Naperville, Illinois. This year we walk with hope and the simplest definition of hope is -” to want something to happen or be true and think that it could happen or be true”. WE HAVE HOPE! And all of you who have supported the cause through your donations, prayers, and love are fueling the progress that is being made step by step.
Attending the walk is an inspirational experience. We see people affected by the disease who struggle to walk the 5k path or are pushed in wheelchairs by someone they love. We see the unsteady gait or uncontrolled movements and it looks so familiar. We walk to honor our father, grandfather and great-grandfather Raymond and his devoted wife and caregiver, Phyllis. We were blessed to have our Dad in our lives much longer than so many families will have their loved ones. Late stage onset is not the norm. More common are symptoms developing in the prime of life between the ages of 30 and 40. And sadly children can be affected too.
Huntington’s Disease gradually robs a person of their ability to control their body’s movements, affects speech and the ability to swallow. It can also cause dementia. In our family we watched what should have been Ray and Phyllis’ “golden years” become a time of deteriorating health, isolation and loneliness. Over 30,000 people in the United States have been diagnosed and thousands more are at risk. The disease is genetic and a child of someone with Huntington’s has a 50% chance of inheriting the disease. There is now a test that can determine if someone is carrying the gene. None of Ray and Phyllis’ 6 children have chosen to be tested. No one shows evidence of the disease. Still when we drop something, trip or can’t think of a word or name, the thought comes to mind, “Is this the beginning?” We pray every day that the disease will not be passed down to the beautiful children and grandchildren our parents would be so proud of.
So, once again we ask for your help. Your generosity in the past has amazed us and touched our hearts. This disease would be forgotten if it were not for the families and friends of those who have been affected. Progress is being made and no donation is too small. Many employers will match donations so please check on that option. Feel free to ask any additional questions and you are welcome to walk alongside us in May. If you prefer not to use the website we can accept donations directly to be turned in on the day of the walk.
THANK YOU AND GOD BLESS! WITH YOUR HELP A CURE WILL BE FOUND!