A personal note from the Team Captain:
Thank you for the wonderful donations so far! I'm excited to be able to do this with my family...and for my family!
My DNA test came back on April 5, 2016 and I was told that I will develop HD in my lifetime. I'm viewing this news as an excellent piece of information to have about my body! It's something I can share with my doctors as an important piece of my physiology. As we get closer to developing a cure, I can assist in drug trials, the results of which may benefit my family and others with HD. Through exercise, nutrition and medications showing promise of neuro-generative properties I can keep my mitochondria as healthy as possible for as long as possible. These strategies were not on the radar for past generations and I feel lucky to be alive as advances in research and medicine are finally being made in the fight against Huntington's Disease. Unfortunately, HD is a rare disease and HD research is not as well funded as the more common disease research out there...so fundraising for HDSA and spreading awareness is another thing I can do. When you have a degenerative genetic disease, there are a lot of things that feel outside of your control. This is my way of taking some of that control back. Please join our walk or donate! It really is a worthy cause...and they are SO close to finding a cure. You can be a part of that happening.
Thank you for visiting our Team fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•41 Centers of Excellence
•65 Social Workers
•160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.
Thank you for your support!