Thank you so much for visiting our fundraising page for TEAM HAROLD! This year will be our 6th year joining the San Fransisco Team Hope Walk.
The guy that we walk for, who is our big man on the team and our biggest inspiration is Harold Granlund! He is a wonderful husband, loving father, and such a big goofball. In our family, HD started with Harold’s dad. He passed away in 2000 due to complications from HD, and he had three sons who were at-risk. Harold was diagnosed as gene positive in 1996, and began showing symptoms of Huntingtons Disease in 2009-2010. Since then, he has been retired on Disability. Currently, his wife Rhonda is his primary caregiver. She stays with him day in and day out, ensuring that he is cared for. It is a tireless job but she does it well!! Due to Harold being gene-positive, this leaves the family’s two daughters—Rebekah and Halle at risk. Rebekah is going to be 20 this year, and has not been tested. Halle is only 13, so she cannot be tested until she turns 18, if she chooses to do so. HD does have a very large impact in our family, and we aspire to raise awareness constantly!
Within this last two years, the family’s eldest daughter, Rebekah, has had the ability to attend a few HD-related events which she can tell you all about on her fundraising page. We have been so blessed to be able to raise awareness for this rare disease, and will continually be fighting and searching for a cure!!
We hope that you will join our team in the walk, which takes place on October 21st at the Sports Basement Presidio in Chrissy Fields, in San Fransisco. If you can’t attend the event, we hope you will at least consider donating to our page to raise money to find a cure!! #CUREHD & #CUREJHD!!
For more information regarding Huntingtons Disease, please read below:
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
• 54 volunteer led Chapters & Affiliates
• 41 Centers of Excellence
• 65 Social Workers
• 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.
Thank you for your support!