Thank you for visiting “Team Emily's Wish” fundraising page. Emily's Wish is to find a cure for Huntington's Disease while helping those affected by it. It’s the result of a young lady’s hopeful and determined fight to help research and let others know about this terrible disease, symptoms of which have been likened to the worst of those associated with Alzheimer's, Parkinson’s and ALS.
Huntington’s disease is a dominantly inherited fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
Emily became symptomatic while in middle school but it was not until high school that she was correctly diagnosed with Juvenile Huntington’s disease. It was then that she learned the cause of her deteriorating thought process and muscle control and that there was no known treatment or cure.
She didn't want anyone to feel sorry for or to be treated differently and fought back in a way that only she could both for herself and for others affected by HD. She opened her heart and shared her story with all who would listen. She took part in studies, trials, workshops, seminars, conferences and fundraising events.
She visited Jan Nolta and her team at UC Davis to support their research. She participated in the iPS cell research at UCI with Leslie Thompson, Dr. Neal Hermanowicz and members of their teams. She also attended Fountain Valley High School and managed, in spite of HD, to graduate in 2006.
Two days after serving as Ambassador for the 2009 HDSA-OC Team Hope Walk, she was hospitalized and within a week lost her battle for life at the age of 21.
Emily is our daughter. She is at peace in God’s care and we will not stop until her wish comes true for others.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Across the United States, HDSA currently supports:
• 54 volunteer led Chapters & Affiliates
• 41 Centers of Excellence
• 65 Social Workers
• 160 Support Groups
Please walk with us by joining our team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page. If you prefer to pay by check (payable to "HDSA-OC"), please send to Ted & Carla at 17955 Sky Park Cir. Ste. F, Irvine, CA 92614.
Please send questions to: Tkrull@starlightsurveying.com
Thank you for your support!
Ted & Carla