Team Sandy’s mission is to spread awareness about Huntington's Disease.
HD grips families in their entirety and drags them down a long brutal road that sometimes feels like there is no end. For the patient, this road is walled by loneliness, anger and utter grief. For their family sharing this road, they’re carrying a bag packed with heartache, guilt, and helplessness.
The road is dark and stormy and we walk it for years, even generations. Luckily, we are sharing this walk with a dedicated group whose mission is to improve the lives of those affected by HD. From community services and education to advocacy and research, the Huntington’s Disease Society of America, HDSA, is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. HDSA has been a longstanding leader in funding global HD research with the goal of finding effective treatments to slow the disease.
With HDSA’s support, we no longer feel alone and helpless. We may still be afraid, but we have strength that cannot be broken. While there is no cure, we continue to push forward in research and regulations. We promise to hold on to hope that our children will see a cure in their lifetime and that one-day Huntington’s Disease will be completely eradicated.
Team Sandy will be joining other families on September 16, 2017 in Durham for the annual NH HD Team Hope walk. If you cannot walk with us, please consider donating by clicking “Support Us” at the top of this page.
Click the 'Roster' tab above to view our entire team, read their personal stories and donate directly to their goal, which all feed back into our main Team Goal of $5,000.00
Meg has pledged to stick her head in a clear plastic box and let LIVE scorpions crawl around on her if we raise $5,000 in donations. If we reach $8,000, we'll upload the full video to TeamSandy's Facebook page.
Yes - this is real! Courtesy of Fear Factor Live. Meg has an irrational fear of spiders. we know this is going to be hysterical to watch (if we can raise the money!) You're welcome!