Hello family and friends, thank you for visiting our Team fundraising page! For all of you who had the pleasure of knowing Joanne she loved being at the beach. If she could have been there 24/7 she would have been. Her joy was infectious when you were with her at the ocean...no matter where it was. I'm telling you this because every single one of us have that special something that truly makes us alive that then inspires those who are around you to see the world as you do in that moment.
What do we want for our loved ones? To live the life that they were meant to live and enrich the lives of those around them. I'm drawing your attention to his because I want those that I have come to know ever since Joanne was diagnosed, my unintended family if you will, to have this life and the possibilites that come with it. So please, help me to help them as you have done all of these years. Your continued support of my efforts brings so much hope to those who live with Huntington's Disease. Thank you again from the bottom of my heart.
With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
• 54 volunteer led Chapters & Affiliates
• 41 Centers of Excellence
• 65 Social Workers
• 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.