Thank you for visiting our Team fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
We are participating in the team hope walk to help raise money and awareness about Huntington's disease. Huntington's Disease has effected in our family for four generations. Myrtle Jeanette Walker-Smith, our Great Great Grandmother had it with out diagnosis. Jeanette Weems, our grandmother was the first to recieve a diagnosis. She passed from HD related complications at the age of 67. Jenette's Children were all diagnosed and passed from complications. Our two of uncles, Sammy(62), Eddy(64), and aunt Cheryle(62) all died from Huntington's Disease. Our mother, Mary Weems, was diagnosed last year when she was 59. We will be walking in honor of all of our family members who have passed and to support our mom Mary Weems.
Here we are at last years walk! The weather was perfect, we enjoyed it with friend and family. Kathy and Jennifer Hill, Jens daughter Kennedy Turner, Gina Cole and her two daughter Ava and Kristen, David and Harriet Raine, Megan Keeling, James Keeling, Helen Keeling, and last but not least our honoree MARY WEEMS!!! We met so many wonderful people at the walk whom we will never forget. I was so nice to be surrounded by the love and support of other HD families!
Mamaw Jeanette Weems
Uncle Sam Weems and Mom Mary Weems
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.
Thank you for your support!