Thank you SO MUCH for visiting our Team fundraising page!

Let me tell you a little bit about HD, it is a very rare disease, and therefore not many people know exactly what it is.

Huntington's disease is a fatal, hereditary brain disorder. It is a devastating disease for which there is no treatment.  

Nerve cells become damaged, causing various parts of the brain to deteriorate. The disease affects movement, behavior and cognition - the affected individuals' abilities to walk, think, reason and talk are gradually eroded to such a point that they eventually become entirely reliant on other people for their care.

Huntington's disease has a major emotional, mental, social and economic impact on the lives of patients, as well as their families.

There is no cure. Medicines can help manage some of the symptoms, but cannot slow down or stop the disease.

HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

Across the United States, HDSA currently supports: 
•54 volunteer led Chapters & Affiliates
•41 Centers of Excellence
•65 Social Workers 
•160 Support Groups

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.

PLEASE register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page. 

Thank you for your support!

 

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