Prior to meeting my husband 8 years ago, I had never heard of HD. It is now quite possiby the largest part of our lives. Andrew is in the early stages. There are three stages of this nightmare, so I am grateful we remain in the beginning. Unfortunately, the beginning is no easier than the last. Huntingtons Disease sucks. It rips families apart and is the truest test of a person's everything. However, our famly is different. Our family is STRICOS STRONG and HD will never win. You all know our story so I will leave you with this. Be nice. Be a good person. Be the absolute best you, you can be. Tell your people you love them. Hug and kiss your babies. Hug your husband and wife until they can't breathe. Laugh. Cry. Take in every single moment and truly feel it until you are numb.
Thank you for visiting our Team fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•41 Centers of Excellence
•65 Social Workers
•160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please walk with me by joining my team and help make a difference! If you cannot walk with us, please consider making a donation to our team fundraising page by clicking the ‘Donate’ button at the top of this page.
Thank you for your support!