In the face of an (as yet) incurable disease, we want to honor those affected by Huntington’s Disease and their caregivers. It is a hard road for both groups. An everyday grind. 365. This year Luca (now 13) and Kalev (now 10) want to support Grandma Sandy by Pumping for the Cure EVERY SINGLE DAY. Our family will all do one pull up on January 1, 2016. Then two push ups on January 2 and three squats on January 3rd. This circle of love will continue until December 31, 2016. A total of 66,795 individual actions in honor and support of HDSA. The four of us will therefore create 267,180 actions. We want our community to throw in too. Could you join us for a month? We would like our total number to reach over 3 million. That is about 100 push ups, pull ups or squats for every person living with Huntington’s Disease. Every dollar is an action and every move is a prayer. Join us by giving and we will send you our YouTube video updates. We would love to see you as you participate. Like our facebook page and post your comments, photos and videos for the whole community. We get stronger together. Sometimes we help each other the most by reminding our community we are all in this together. We do what we can to make life easier for each other. Lend an ear, cook a meal, or donate give to the cure. We will honor those in the fight with a moving meditation. Last year we rode our bikes 600 miles and Crank for the Cure brought the community together and funded a step forward in the research for the cure. We want Pump for the Cure to be WITH all of you. This year we are keeping it close to home. Because it’s all about family. And we are proud to be a part of yours. 365
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •39 Centers of Excellence •40 Social Workers •170 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.