As many of you know, Huntington's Disease has had a devastating effect on my family. My father-in-law suffered from the disease, consequently his seven children had a 50/50 chance of having the disease. Sadly, five of them had or have it. Now that Sue has been diagnosed with it, our children have a 50/50 chance of having the disease. Funds raised will go toward vital research aimed at curing the disease itself or at least treating the symptoms as well as supporting programs that enhance and improve the lives of those who have Huntington's.
And to be clear, because I know my friends, you are donating money. You are not wagering on whether I finish the walk. I have already started stretching, so I am confident. Megan has put together a great team of walkers and we promise to do what we can for the cause. We promise NOT to drink until AFTER the walk.
Here is some information about the disease and the organization dedicated to stopping it:
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.