Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
Our family has been raising funds for the HDSA for the last 18 years in memory of my beautiful Aunt Bernadette, who began displaying symptoms of Huntington’s Disease (HD) in her early 20s. She was misdiagnosed for years before finally a sweet Nurse had suggested that she get tested for HD. It was up until that day that our family watched her struggle and go from hospital to hospital unsure of what was truly going on. On October 26, 2003 our family lost a sister, daughter, and aunt to HD after a 14 year battle. Despite all our efforts, doctors, and hospitals, we weren't able to ease her pain or save her life. We will never forget the happiness she brought to our family or the struggles she endured. Our hope is that by raising funds through HDSA we will be able to help others and support research to find a cure.
With platinum blonde curly hair and infectious laughter, Bernadette had a radiant personality. She loved to be the center of attention. Her charming spirit lives on as we and so many of our supporters continue to fight for the cause.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.