Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
My mother was diagnosed with Huntington’s disease over 10 years ago. HD is a rare neurodegenerative disease that is hereditary. This means that my brother and I both have a 50% chance of developing the terminal disease and potentially passing it on to our children. Most people are unaware of the disease and the easiest way to explain it is the physical aspects of ALS combined with the deteriorating mental capacity of Alzheimer’s disease.
I want to recognize the person my mom was before this disease. She was a mother of two, a 7th grade teacher, a wife and an active member of her community. She was someone who ran 5k’s on Saturdays, went to church on Sundays and made the best pound cakes.
Over the years, I have witnessed this horrific disease rob my mother from her true self. I have watched her lose her ability to take care of herself and walk. I have watched her struggle to find words to speak and eventually her muscle coordination to smile.
This disease has affected my family in so many ways and continues to haunt me knowing that I have a 50% chance of following in my mother’s footsteps and or potentially having to watch my brother go through the same nightmare. Though there is not much I can change about my fate or fortune I find hope in all the research the HDSA funds and strength in the support they provide to families such as mine. I am passionate about spreading awareness and raising funds for HDSA so that one day there will be a cure.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.