As you know, Christopher was diagnosed in 2011 with HD,at the age of 24. As Chris can no longer "Walk the Walk" due to the progression of the disease, WE NEED YOUR SUPPORT more than ever. We cannot lose HOPE that a cure will be found and Chris will be part of the last generation to lose the battle to this awful disease. #LastGen #Let'sCrushThis
For the past 7 years Chris has been faced with many rare symptoms of the disease. He is faced with both physical and cognitive challenges. He sleeps more and eats less. He no longer is able to speak or walk and must have care 24/7. But he is still Chris and he is still with us fighting the biggest battle of life.
HD has destroyed his dreams and has robbed him of his future, but it has not destroyed his spirit!
A firefighter at heart, Chris, continues to face each day's challenges with courage, strength and determination.
Please join "TEAM CHRIS" and walk with us on Sunday, September 30, 2018 in Roosevelt Park (Edison, NJ) as we support Chris in his battle with Huntington's Disease. Last year "TEAM CHRIS" raised over $15,000......we hope to surpass this goal this year. As in past years, this year's walk will include a BBQ for all attendees as well as a DJ, raffles and 50/50 raffle.
All money raised is used for research, drug trials, and to fund the HDSA Centers of Excellence, where Chris recieves his care.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •29 Centers of Excellence •40 Social Workers •170 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.