This personal to me read the information below to find out why.
While growing up in Germany, Huntington Disease (HD) was called the “VITZ Disease” because of the uncontrollable movements people displayed. My grandmother passed away from this disease in the 1800s. Not until my mother was diagnosed with it in the mid 1940s did we know what it was really called. During this time, my mother was diagnosed with chorea which developed into full HD. In September 1976 she lost her battle due to the associated symptoms. In 2000 I lost my oldest brother also to HD.
In 2008, with the encouragement of a friend, I went to see a neurologist. He diagnosed me with chorea and referred me to consult with Dr. Bird at Seattle Medical Center. After consulting with Dr. Bird the test for HD was conducted, which a few weeks later came back positive. After hearing the results, I wanted to go somewhere and hide but I thought of my kids. I had to tell my sons what the results were. Knowing HD is genetic I was worried because two of them had just married and were starting families, one already having a two year old. I worried it may have been passed already.
My oldest two sons decided to take the test which both also returned positive. I continued to be in denial until one day I fell, which resulted in me having brain surgery. Only after hearing from the doctors that most likely because of me having HD I was alive did I began to take everything about HD more serious. The HD caused my brain to shrink, giving room for the bleeding that occurred. I survived and I really wanted to live, so I began to take the medication to help control my movements. I also decided to participate in Enroll-HD to help find a cure or help with the diagnosis of earlier signs. Living with HD has changed some of the things I used to do but I have not let it rule my life.
In a way, HD has been a blessing in disguise for our family. It has brought many loving friends and family together, showing tremendous support and strengthening our relationships. It reminds us to live fuller lives, create more memories and forgive easier. Knowing we have each other helps us get through the difficult times.
And while we are extremely lucky to have each other, times do get difficult. That’s why the Team Hope Walks are huge in raising funds for research and to assist families like ours with resources to help get through it all. Please join us by spreading your love at this year’s Team Hope Walk in Seattle on September 8th. Your support will change lives and eventually save them.
Much love and thanks,
Hilde(Kim) Foreman (and the rest of the Foreman Family)
Again thanks for reading now go ahead and complete the steps below:
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.