On Saturday, September 15th, Jeffrey and I will walk with others to raise awareness of Huntington's Disease and to support the Huntington's Disease Society of America (HDSA). We hope that you will help us and HDSA achieve our mission to improve the lives of everyone with Huntington’s disease and their loved ones.
As you know, Huntington’s disease (HD) is a cause close to my family – I have lost my mother and brother to this devastating disease, and live each day with the 50/50 risk that I might have inherited the gene that causes it. HD is a genetic brain disorder that results in the progressive losses of both mental and physical control – it slowly robs a person of everything they have, until ultimately, it takes their life. There is currently no cure for Huntington’s disease, and that’s why I need your help!
Our family has found hope through our involvement with the Huntington’s Disease Society of America (HDSA) by serving on the National Board of Trustees, participating in local events, and advocating for all those affected by HD. HDSA provides the help that families and caregivers need today through community services, education events, and patient care provided by the HDSA Centers of Excellence; and they provide hope for tomorrow, through a consistent focus on research for a cure.
Across the United States, HDSA currently supports:
·54 volunteer led Chapters and Affiliates
·43 medical Centers of Excellence
·70+ Social Workers
·170+ Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or just call me!
I can’t thank you enough for your continued support.