Thank you for visiting John and my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Marin Family has been hit hard by Huntington's disease. The story begins with John's Grandfather Cahoon who committed suicide and, unfortunately, John's mother, Phyllis Iva Cahoon Marin inherited HD from her father. In the 1940's, Huntington's Chorea, as it was called then, was rare and still is so Phyllis was misdiagnosed and placed in Napa State Hospital, living there until her death in 1968. The three Marin sisters, Lora, Marcia and Cindy inherited the mutated huntingtin gene from their mother and have passed away; Lora in 1989, Marcia in 1999 and Cindy in 2008.
When Keith and Vanessa both became engaged, John decided to be tested to give his children a definitive answer. Thankfully, John tested negative in January 2016. This horrific disease has now been stopped in our family since our children are not at risk. We are truly blessed.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •43 Centers of Excellence •70+Social Workers •170+ Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.