I'm Tim and I have HD. I've had symptoms for about 10 years. I first started noticing that I couldn't sit still. And I was getting angry a lot. One day at work I lost my temper and I got fired. I started to suspect that I had HD and eventually was diagnosed. My symptoms get worse all the time. I love to play guitar, but I can't play chords any more. I have a hard time walking, too. I get scared when I'm in public because there are usually too many people coming at me all at one time and I can't process all of the information fast enough.
I got connect with HDSA shortly after my Dad died. I started participating in a trial and then started going to support group. I met so may people in the HD community, many who were worse off than me. HDSA helped me to cope with my diagnosis. And now HDSA is helping give me hope. I recently went to the annual convention and learned about really amazing research happening. There is a real chance at an effective treatment for those of us with HD. And it's coming in the next few years!
I hope you will support me. I am trying to raise $1000. With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •43 Centers of Excellence •70+Social Workers •170+ Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.