Christy Worthington

Sacramento, CA Team Hope Walk

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My Dad was diagnosed with HD in 1998 or so. At 5'9" he was down to 95 pounds this time last year. He had a feeding tube put in to help increase his caloric intake and he is almost up to 115 pounds now. But, we need a cure. We need to stop this hideous disease. Excessive weight loss is only one of the problems he has to endure. 

is is my hope that we can someday say that no other family will need to suffer from this.  

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.

Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer’s diseases – simultaneously.

HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•43 Centers of Excellence
•70+Social Workers
•170+ Support Groups

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit or call 1-800-345-HDSA.

Please register and help make a difference! If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page. 

Thank you for your support!


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