Some of you know that my husband, Michael, was diagnosed with Huntington's Disease in January of 2015. He is the bravest man I know. I am lucky to be married to him. This is a scary, cruel disease. It has caused deterioration of his body and mind. He fights this battle every day with grace and strength. There is no cure, and the chance of our children inheriting this horrible illness is 50/50.
In July, Michael's sister, Liz, lost her battle with Huntington's Disease. We miss her and walk to honor her memory.
October 2017 Our daughter, Kaylie tested positive for this deadly disease. My hope is for a cure to be found before she begins to suffer from the symptoms of HD.
As you can imagine my heart is heavy, but my spirit is strong. Walk with us if you are able, or please consider donating.
Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.