Huntington's Disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It affects an estimated 3 to 7 per 100,000 people of European ancestry. My mom is one of them. So was my grandfather.
HD deteriorates a person’s physical and mental abilities - in 90% of cases symptoms appear between the ages of 30 and 50 and has no cure. Many describe the symptoms of HD as having ALS, Parkinson’s and Alzheimer's - simultaneously.
It wasn’t until 1993 that researchers were able to identify the gene that causes HD, which is a dominant mutation of one of an individual’s two copies of the Huntington gene.
In layman’s terms, this means every child of a parent with HD has a 50/50 chance of carrying the faulty gene. It means my brother, sister and I each have a 50/50 chance of inheriting HD.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •43 Centers of Excellence •70+Social Workers •170+ Support Groups
Please register and help make a difference. If you cannot participate, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.
With your aid, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease (HD) and their loved ones. With your help, you can help my family.