Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure. As many of you know my friend Andy was diagnosed with Huntingtons only a few years ago. This past year has proved to be the most challenging for him and his family as his disease has continued to progress and he now is in a facility full time.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Andy & Amanda brought thier twins Scarlett & Jack into this world HD free, ending the disease with Andy.
This annual walk is a way for us to support Andy, Amanda, Jack and Scarlett and an opportunity to stand united and support The Huntington’s Disease Society of America. HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families. This organization does not get a lot of the funding events lie these are really important to make a difference for research and to support families effected by this disease.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.