Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
I am the caregiver of an HD warrior. My daughter Kelsey was diagnosed with Juvenile Huntington's disease in 2014. At that time, she was struggling to complete her college degree. Even though she managed to graduate from college, she's been unable to work in a meaningful way. Her ability to think, walk, talk, eat, sleep, and take care of her basic needs is slowly deteriorating over time. Over time, she requires more and more assistance with activities of daily living. Kelsey's abilities will continue to deteriorate until she is completely unable to function, and the disease takes her life. Despite the severe challenges that Kelsey faces, she continues to be positive and volunteers in her church as much as she can. We continue to be hopeful that research will come through in time to provide treatment to Kelsey to halt the progressive breakdown of nerve cells in the brain.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •41 Centers of Excellence •65 Social Workers •160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.