Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
I began volunteering for HDSA in 2009. We built a great team of volunteers that put together the first Team Hope Walk in Baton Rouge. I got involved because my best friend from elementary school was affected by HD. At the time, her family was the only one I knew of that was affected. Since 2009, I have met so many others that are fighting a similar battle. Each year that we do the walk, we bring these families together for a day of unity. Many people affected by HD feel so alone... from those who have it, to those who wonder if they have it, to those that are caring for someone who has it, and those who are standing by wondering what they can do to help and wishing they could make the disease go away. At our walk, we are there for each other. We understand more than most the struggles and the pain, and also the love and the joy that are still part of this journey. So much has happened in the 9 years I have been part of the mission of improving the lives of everyone affected by HD. Big things are happening. Please join us on Saturday, April 28th at Highland Road Park at 9am. Also, please consider joining my team and donating to this our cause. The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •41 Centers of Excellence •65 Social Workers •160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.