Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
My Dad was diagnosed with HD in August of 2016. We had never heard of the disease, but it explained a lot about the cognitive decline we had been noticing in my Dad. My sister and I decided to be tested as well, as we had a 50% chance of having it, and passing it to our children. I found out that I do not have it and my 2 girls will be safe. However, Thanksgiving week of 2016, we found out my sister was pregnant and had HD. This has been a brutal, gut punching dance between hope and faith, disbelief and fear. We are so hopeful that my sister makes it into a clinical trial and will never give up believing that we can somehow beat this. With your donation, we can help fund more rear ha to end this miserable disease once and for all. Please help me make a difference.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •41 Centers of Excellence •65 Social Workers •160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.