Thank you for visiting my personal fundraising page for the 2017 Huntington's Disease Society of America (HDSA) Phoenix Chapter Team Hope Walk.
We are walking to raise awareness and to support the mission of the Huntington's Disease Society of America. Our goal is not only finding a cure for "HD," but also improving the lives of those with HD and their family members. From community services and education, to advocacy and research, HDSA, a non-profit organization, is the world’s leader in providing help for today and hope for tomorrow for those affected by this disease.
Huntington’s disease is a devastating, hereditary disease. It causes the progressive breakdown of nerve cells in the brain, deteriorating a person's physical and mental abilities during their prime working years. It is often described as having Alzheimer's, ALS and Parkinson's all at the same time. Presently, there is no cure, however, research and therapies being tested are bringing the cure closer than ever before.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of inheriting the mutant gene, and if so, will have the disease. Today, there are 30,000 symptomatic Americans and more than 250,000 "at-risk" who may one day also be symptomatic. Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
I hope you will consider walking with our team "Sedona Strong" in the Phoenix Walk, If you can't be there physically, please consider making a donation to my personal fundraising page by clicking the "Support Me" button at the topof this page.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.