It's that time of year again and the gun has been loaded once more to see if the dog has nine lives.
It's been a tough HD year for us but we stay strong. We lost Rick Gamboa (Kim's uncle) and had a neice diagnosed with JHD. But, eff that, we are gonna stay strong and beat this disease.
The good news is that it looks as if all your donations and support is leading towards a treatment. This year a trial taking place on human's for gene silencing therapy was expanded to include more patients, include former patients (which means it is showing positive signs) and include new regions. That sh*t is expensive, so the fact that they are widening the treatment is very, very, very encouraging.
So, I ask of you to open your hearts and donate because it really helps everyone including you. Doing something nice for someone daily makes people happier.
If you want to be the cool kid, help raise money, join my team and let's go for a walk.
All the other stuff is below. Thank you from the bottom of our hearts.
The de Loayza family
For those of you who don't know Kim (the kids Mom) suffers from HD. Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
I sit on the Board of Trustees for The Huntington’s Disease Society of America. The HDSA is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.