Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones. Maybe even find a treatment, or possibly a cure.
As many of you know, I was diagnosed with Huntington's disease in 2014. Getting the diagnosis helped explain a lot of symptoms I have experienced over the years. Every day since then has been a struggle to deal with the physical and cognitive impairment as their severity has worsened.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence (including the Kaiser facility in Sacramento that manages my HD) • 65 Social Workers • 160 Support Groups (I attend a monthly group in Palo Alto)
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.