As many of you know, my father had been steadily declining from Huntington's Disease for several years and had been living in a care facility because he could no longer be given the care he needed at home. Dad wasn't afraid of anything in life EXCEPT dying. As long as I can remember he claimed he would never die and he fought hard to avoid this fear. He had many close calls, making many miraculous recoveries, each time beating the odds. In June he couldn't fight any longer. With the comfort of my mom by his side he gave into this horrific disease.
We will push on to find a cure for this disease that is plaguing our family. It has taken our dad, our grandpa, and an aunt. It is now taking over one of our cousins and an uncle. Every child of one of those affected with HD has a 50/50 chance of inheriting the same fate. Our mission is to work as long as it takes to help raise money for research to stop this disease and protect our future generations.
Any donation, no matter how small or large will help research be one step closer to finding a cure. My family and I, along with friends, will be participating in Team Hope Walk on Saturday Oct. 14th at Voice of America Park, Cincinnati. If you'd like to sponsor me and make a donation to a great cause, we would really appreciate your help.
We would also love for anyone and everyone to join our team and come walk with us. You can join us by registering or joining Team Downie through my fundraising page for only $20/$10 (adult/child) to walk, which includes a t-shirt. Please consider HDSA as one of your charitable contribution choices. Don't forget it's a tax deduction (tax id# 13-3349872) and many companies also do a match program.
Thank you for visiting my Personal Fundraising Page. Donating through this site is simple, fast and totally secure. Many thanks for your support -- and don't forget to forward this to anyone who you think might want to donate too!
Love to all
Huntington's Disease is a devastating, hereditary, degenerative brain disorder for which there is no effective treatment or cure. HD is a debilitating disease which slowly diminishes the affected individual's ability to walk, talk and reason. Eventually the person must rely upon others for their care. HD effects 30,000 Americans already living with the illness and 250,000 who have the 50% chance of genetically inheriting it.
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.