Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
Hi everyone my name is Paula Martin, I'm 27 years old I need your help! There's a walk coming up soon for Huntington's Disease in Irvine, CA. My dad has it (who is in the picture above) and I may end up getting it too and so might my sister. My grandpa died from it and so did my aunt, both from Ohio. Its devastating for not only the one who has it, but for the families who live with it, too. Watching my dad go through that disease while I was growing up was terrible for me. He slowly got worse and worse, but now he's in a nursing home getting the care he needs so I'm glad he's ok for now. He can't take care of himself anymore, walk, eat by himself, or talk, but he keeps going. So, I'm going to keep going, too! I used to keep this disease a secret, but now I want the world to know more about this disease! Hopefully we can find a cure somday!
My dad is slowly dying and he's only about 60 years old. HD has no cure for now, but there is hope! We need all the support we can get so anyone who can donate to this cause please click on the donate button. This donation will go to a great organization called HDSA (Huntington's Disease Society of America) which is dedicated to helping those with HD. So if you want to make a difference in the lives of many like my dad who suffer with HD, please take the time to donate thanks! It would mean the world to me! More info is below about HDSA.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.