Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s disease and their loved ones.
My husband and I have been married 30 years, and we have known this vicious disease was in his family since we began dating. It was Doug's dream that he would be the last family member to be at-risk for Huntington's Disease (HD), and that has become our reality. Gary, Doug's father, survived 15 years with HD thanks to the care of his loving wife, Helen. Gary's mother was mis-diagnosed as Parkinson's Disease for over 10 years, and during that time Doug was born.
Truly amazing progress has been made in our life-time towards finding a cure for Huntington's Disease! There is a clinical trial using immunotherapy that looks extremely promising! Not to mention the identification of the HD gene during our marriage. Thank for supporting the research sponsored by HDSA; and even more importantly, THANK YOU FOR SUPPORTING US!!!
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.