Thank you for visiting my personal fundraising page!  Another year has come and gone.  I know some of you know my story of challenges with Huntington's Disease but for those of you that do not, here is my story.   Alethia, my first wife, unknown to me inherited this dreadful  disease from birth and she began to show symptoms of the disease shortly after we had 3 children, Angela, Kristi and Justin.  Angela, who's picture you see above, became symptomatic in her early twenties and slowly declined until May 1st of 2014 she went to be with Jesus at the young age of 36.  Kristi and Justin are now both in the middle to last stages of HD and their quality of life is greatly affected.  They have trouble with simple things that we take for granted such as eating, swallowing, walking and talking.  To have a conversation about anything is very difficult and does not happen very often.  I miss that.  

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.

HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.

The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD.  From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.

Across the United States, HDSA currently supports: 
• 54 volunteer led Chapters & Affiliates
• 41 Centers of Excellence
• 65 Social Workers 
• 160 Support Groups

To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.

Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page. 

Whether your donation is big or small everything makes a difference

Thank you very much for your support!

Phil Pearson

 

 

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