Thank you for visiting my personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s Disease and their loved ones.
As most of you are aware my Mother was diagnosed with Huntington's Disease (HD) about five years ago. Since then my sister has tested positive for the disease which means my nieces now live at risk for HD. The decision to be tested for HD is a difficult and emotional decision. Actress Marianna Palka allowed her testing process to be filmed in a 22 minute documentary called 'The Lions Mouth Opens'. If you are interested in learning a little more about what people go through, this film can be watched for free on Youtube: https://www.youtube.com/watch?v=rX8zeo4ieLY (you will need to copy this link and paste it in your browser, I can't figure out how to make it a link on this fundraising site).
In some ways our family is lucky that my Mother's case is currently very mild and she doesn't suffer from the depression and extreme anger that is common with HD. With that said her chorea has gotten worse this year and she has suffered two falls in the past 4 months. One resulting in a nasty cut on her head and the other a broken finger. Yet through it all Mom still approaches everyday with a smile on her face.
Lara, Sam and I will be once again walking to support our families battle with HD. Please consider sponsoring us.