On October 1, 2017 we will be participating in the 7th annual Las Vegas Team Hope Walk for Huntington's Disease Society of America (HDSA).
Many of you have supported us for the past seven years and it means so much as this cause is obviously a very important one to our family.
Huntington's Disease (HD) is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain in the region that controls movement and cognitive control. It deteriorates a person's physical and mental abilities and has no cure. We hope that through your support and advancing research around the world, strides can be made toward finding a cure for this devastating disease.
The symptoms of HD are described as having ALS, Parkinson’s & Alzheimer’s - Simultaneously!
Don's grandfather died with HD. He had five children, one boy and four girls. Two of the girls inherited and died with HD as well as Don's father who died with it in 1997 at age 76. Don was diagnosed in 2010 and his sister Deb in 2013.
This year has brought new challenges for Don and Deb, but as always, they are optimistic and moving toward new beginnings! Deb is now a patient with the Cleveland Clinic Lou Ruvo Center for Brain Health and brought Don on board this year. Their physicians, therapists and educators are world-class and we all feel very fortunate to have such a wonderful facility in Las Vegas.