Thank you for visiting our personal fundraising page! With your help, we can help HDSA achieve their mission to improve the lives of everyone with Huntington’s Disease and their loved ones .Many thanks for your support, and feel free to forward this to anyone who you think might want to donate too!
For those who may be unfamiliar with "Bike for the Cure," let me digress. In 1997, when the Internet was still in its infancy, Marie became aware of Huntington's Disease through meeting Carmen Leal, author of Faces of Huntington's and Portraits of Huntington's, via the Christian Writer's Group list. In June 1998, at Carmen's invitation, she attended the 13th Annual HDSA Convention in Denver, CO. During those three days, she met many people with HD, caregivers, and people at-risk. She was deeply moved. Her Christian faith required action; "...let us not love with word or with tongue but in deed and truth" (1 John 3:18). She had to do something, but didn't know what ... yet.
Later on in the Fall of 1998, Marie met Charlotte Reicks, through a mutual friend. She and Evelyn Logan were planning a long-distance bicucle ride across America for the American Bible Society and the Lutheran Hour Ministries. The light went on! Marie asked them if she could join them, and ride for HD, and they said she could! The original duo became a trio, and the first "Bike for the Cure" ride, from Santa Monica CA to Arlington VA, to the 14th Annual HDSA National Convention in 1999, became a reality and now a tradition.
Bike for the Cure XIX is the 19th ride for HD; prior rides include two coast-to-coast rides, Bike for the Cure '99 and Bike for the Cure 2000, Border War on HD (Vancouver BC, Canada - Tijuana Mexico), Ramble 'Round the Colonies (Manchester NH - Columbus OH), Trek Across Texas (Texline - Houston), Kick HD on Route 66 (Albuquerque NM - St. Louis MO and the KATY Trail), Coastin' for HD (Wilmington DE - Atlanta GA), Midwest Meander for HD (Kearney NE - Milwaukee WI and Chicago IL - St. Louis MO), Rockies to Plains (Grand Junction CO - Oklahoma CIty OK), Cycle the Heartland (Clinton MO - Pittsburgh PA), Canyons to Cactus (Grand Junction CO - Phoenix AZ), Coastin' to Carolina (Bar Harbor ME - Raleigh NC), Plains to Lakes (Belle Fourche SD - Minneapolis MN), Venture to Vegas (Grand Junctioni CO - Las Vegas NV), Pedal the Gulf for HD (Galveston TX - Jacksonville FL), Bikin' the Dixie Highway for HD (Sault Ste. Marie MI - Louisville KY), Bike for the Cure XVII (Albuquerque NM - Dallas TX), and Bikin' the Trails for HD (Pittsburgh PA - Baltimore MD). Over 24,000 miles have been pedaled through parts of 47 states and Washington DC. Our fundraising goal is $25,000 to bring the total raised to $718,500.
This is Charlotte's 25th year of cross country bicycling for charity, as well as her 18th bicycle ride for HD. Charlotte's family has been her support: two sons one daughter-in-law, and three grandchildren. Every year, Charlotte arranges for our overnight stays during the ride. She was a teacher for 25 years in Michigan, at Grand Junctiion High School, and Colorado Mesa University (formerly Mesa State College). The last 22 years she has been a legal secretary and now is a medical transcriptionist. She uses her bicycle as her primary means of transportation.
This is Sherri Kole's eighth "Bike for the Cure" ride. She completed the 2-day "STP Classic" from Seattle WA to Portland OR three times as well. Sherri has organized and put on a pig roast fundraiser in Lewiston ID seven times. These events raised close to $100,000. Sherri has two special reasons to ride. Her 43 year old son tested positive for the HD gene 12 years ago, and is now symptomatic. She also has an 8 year old "at-risk" grandson.
Alina del Rio will also join us again this year. This will be her fourth "Bike for the Cure" ride. She is a writer and a decorator from Brooklyn NY. She is also gene positive. Alina's motto is "Making a difference one mile at a time."
These past eighteen rides would not have been possible without others who have also shared in the riding and fundraising. Past riders include Gary Heiman (Plains to Lakes, Venture to Vegas, Pedal the Gulf, Bikin' the Dixie Highway, Bike for the Cure XVII, and Bikin' the Trails), Mary Ann Taylor (Pedal the Gulf, Bike for the Cure XVII, and Bikin' the Trails), Amy Mack (Bikin' the Dixie Highway and Bikin' the Trails), Sandy Lozier (Midwest Meander. Rockies to Plains, and Bike for the Cure XIX), Heather Chynoweth Farmer (Venture to Vegas and Pedal the Gulf), Hope Chynoweth (Pedal the Gulf), Devon Walker Hatem (Pedal the Gulf), Kathy Lindner (Bikin' the Dixie Highway), Shana Martin Verstegen (Midwest Meander), Scott Springer (Bike for the Cure 2000), Amanda Adams (Border War), Shane Williams (Border War), John & Marie Elsner (Ramble 'Round the Colonies), Sara Jaramillo and her then seven year old daughter Cassie (Rockies to Plains). Marie's wonderful husband Ron has been "the wind beneath my wings" over the years, forwarding the Daily Messages on e-mail to over 200 folks and managing our website Heartfelt gratitude to Jennifer Hickok who designs a new website each year.
Each year the ride ends at the site of the HDSA National Convention. This year the National Convention is in Schaumburg IL (a NW suburb of Chicago IL). In Pittsburgh PA in 2008, Marie was honored as the recipient of the National Award for Outstanding Fundraising.
Thanks to all past donors who have given to help find a cure! These rides have changed our lives for the better. Marie's grafting into the HD Community (since it does not run in her faily) has afforded her and the other riders opportunities to meet the most amazing people we know, and to see so much of the contry we love!
Huntington’sDdisease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports:
•54 volunteer led Chapters & Affiliates
•29 Centers of Excellence
•40 Social Workers
•170 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Thank you for your support!