5th Annual Freeze HD

Join us on September 28, 2019

Buy Tickets! Donate To This Event
Ticket Quantity Left Price Each
Platinum Sponsor- 30 VIP Tickets to the Event which includes Celebrity Meet and Greet, Name & Logo recognition on invitation, press releases, marketing collateral, event website, social media outlets, event monitors, stage, blue carpet and verbal “Thank you” by emcee from event stage Available $20,000.00
Gold Sponsor- 20 Tickets to the Event, Name & Logo recognition on invitation, press releases, marketing collateral, event website, social media outlets, event monitors, stage, blue carpet and verbal “Thank you” by emcee from event stage & speaking opportunity. Available $10,000.00
Silver Sponsor- 10 Tickets to the Event, Name & Logo recognition on invitation, press releases, marketing collateral, event website, social media outlets, event monitors, stage, blue carpet and verbal “Thank you” by emcee from event stage Available $5,000.00
Bronze Sponsor-6 Tickets to the Event, Name & Logo recognition on invitation, press releases, marketing collateral, event website, social media outlets, event monitors, stage and blue carpet Available $2,500.00
Bar Sponsor- 4 Tickets to the Event & Name & Logo recognition on event bars, invitation, press releases, marketing collateral Available $1,000.00
Friend of the Freeze Sponsor- 2 tickets & name recognition at event Available $500.00
Individual Tickets- CAN BE PURCHASED AT DOOR Available $125.00
Event Details
Where Avalon Hollywood
Los Angeles, CA
Starts 09/28/2019 @ 6:00 PM PDT
Ends 10:00 PM PDT
Check-in Time 6:00 PM to 6:15 PM PDT
Ticket Cutoff 09/27/2019 @ 5:00 PM PDT
Donation Cutoff 12/31/2019 @ 12:00 AM PST
Contact Natalie Carpenter
Phone 949-542-3907
Email Address ncarpenter@hdsa.org

 

 

A few days after Christmas in 2013, Kelsey and Scott Porter’s life changed forever.

 

Kelsey’s parents, Ken and Diane Mayfield, sat the family down and shared with them that Diane had been diagnosed with Huntington’s disease. After coming to grips with what that meant for Kelsey’s mom, they realized that Kelsey had a 50% chance of having it as well. In an instant, a disease they had never heard of before became a permanent part of their lives. 

 

Kelsey and Scott had been married just 8 months at this point. They had always planned to start a family and knew this news would not change their minds. The first step was for Kelsey to get tested. In early 2014 they received word of her diagnosis. Gene positive. Huntington’s is in her DNA. At some point in Kelsey’s life, if there is no medical help, she will experience the effects of Huntington’s disease. 

 

Undaunted, as Kelsey always is, she threw herself into figuring out how to have children that would be free of HD. She discovered PGD-IVF (Pre-Implantation Genetic Diagnosis - In Vitro Fertilization), a process in which embryos are fertilized outside the human body and tested for specific genetic diseases before being implanted. Although an arduous process, the Porter’s children would not only be free of Huntington’s but this also meant HD could no longer be passed down by their children either. After the extensive testing, Huntington’s disease was eradicated from their family line going forward. The Porters now have two beautiful, healthy little ones, McCoy Lee and his little sister Clover Ash. 

 

Despite the positive of having children free of HD, Huntington’s is still a force in the Porter’s family. Kelsey’s mother is currently living with the symptoms of Huntington’s, as Kelsey will eventually too. It has been discovered that Kelsey’s grandmother also had HD meaning many other aunts, uncles and cousins have a fifty percent chance of having inherited the gene themselves. Since her mother’s diagnosis there have been four other confirmed cases in her family and the “at risk” numbers are staggering. When we say that, “Huntington’s disease is a family disease”, it should not be taken lightly. 

 

On Saturday, September 28, 2019 we will gather at Avalon Hollywood for drinks, dancing, great music, celebrity guests, a fantastic silent & live auction and a few surprises! Our goal is to raise $250,000 for the Huntington’s Disease Society of America. HDSA is the world’s premiere non-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. 

 

Thank you for joining our “family” in the fight against HD by purchasing tickets or sponsoring the 5th Annual Freeze HD on September 28. Go tohttp://www.HDSA.org/FREEZEHD  today to purchase tickets and make a difference!

 

Thank you! 

Scott & Kelsey Porter, 5th Freeze Honorees

 

 

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$3,675.00 Raised
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