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Where: Maine General Hospital
Time: 9:00 am
Check-in: 8:30 am
Contact: Margo Hayes
35 Medical Center Parkway, Augusta, Maine in Conference Room 2
There is no charge for parking in the Maine General Parking Lot
8:30 Registration and Continental Breakfast
9:00 Welcome and opening comments
9:15 Huntington’s Disguise – Jim Pollard
10:45 Advocacy and Action-Nancy Patterson, Maine Affiliate Chair
11:15 “Let’s Hear From You” What do you want from HDSA?
12:30 Genetic Testing-Dr. Beekman, M.D.
1:00 The Ethics of Crisper-Dr. Serreze, PhD
1:30 Afternoon Break
1:45 Clinical Research, The Promise of Progress, a presentation and panel discussion: Dr.
Beekman, Dr. Serreze, PhD, and Audrey Winograd, JD, MSW
2:45 Final comments/questions from attendees.
There is no charge for the event but you must register by April 20th
Contact Margo West if you have any questions about this event or if you have an interest in volunteering for HDSA in Maine. firstname.lastname@example.org
This program is funded by the Huntington’s Disease Society of America through an unrestricted educational grant from Genentech.