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Huntington’s disease is a rare genetic neurological disease that deteriorates a person’s physical and mental abilities. Its symptoms are similar to those of Alzheimer’s, ALS, and Parkinson’s, and usually appear between the ages of 30 to 50, worsening over a 10 to 25-year period. Every child of a parent with HD has a 50/50 chance of carrying the faulty gene. There are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Although there are drugs to help treat a few of the many symptoms, there is nothing to stop the progression and no cure.
I really didn’t know much about Huntington’s disease until my uncle was diagnosed with it about 10 years ago. I definitely didn’t know what his diagnosis would mean to the rest of our family.
My mom started showing symptoms about 4 years ago and was diagnosed not long after. She and my dad have learned a lot about the disease and its effects through the talented doctors and counselors at the Huntington's Disease Society of America's (HDSA) Center of Excellence in Iowa City, Iowa.
My entire family has been staying up-to-date through the HDSA and through HDBuzz, an online site founded by two incredible HD scientists, Dr. Ed Wild and Dr. Jeff Carroll. This team is dedicated to bringing accurate HD laboratory and clinical research news to the Huntington's community in easy to understand terminology.
The incredible thing is that the more we know, the more we have reason to hope. We are proud and honored to work with the HDSA to provide hope, support, and resources for all of those affected by this disease.
We would be honored and grateful for you to join us as an event sponsor or attendee during a night filled with live music, drinks, great food and silent auction.
We hope to see you all there!
Yours in hope,
The Hamilton Family