The Huntington’s Disease Society of America (HDSA) believes Family is Everything. Which is why we work tirelessly to be by you and your families’ side every step of this journey. Whether it’s offering support groups for patients and caregivers, funding research to find true impact in our understanding of HD, or even providing a fun environment for you to connect with other families. This is done through our incredible volunteer-led Chapters & Affiliates to which the Upper Midwest Region is proud to be represented by Iowa, Minnesota, Nebraska, North Dakota and South Dakota. Together, we serve thousands of Midwesterners annually. We are proud of our 50 years of service and for making 2017 the biggest year yet!
This year we:
* Increased the number of HDSA Centers of Excellence from 39 in 2016 to 41 in 2017.
* Offered new Online Support Groups to provide expanded support access across the country.
* Formed the Huntington’s Disease Coalition for Patient Engagement (HD-COPE), a new global coalition to give families who are affected by Huntington disease (HD) a direct and impactful voice in HD clinical research along with the European Huntington Association (EHA) and Huntington Society of Canada (HSC).
* Launched a free tele-health counseling service, providing HDSA-trained licensed social workers and psychologists to families in all 50 states to help manage the emotional symptoms and burden of HD.
* And most exciting, Ionis' announced the completion of the Phase 1/2a study of IONIS-HTTRx, a historic moment in the fight against HD as it represents the successful completion of the first trial to treat the underlying cause of Huntington's disease, the genetic mutation itself.
Each and every day for the last 50 years, HDSA has put your dollars to work in our HD community while funding ground-breaking research to create a world without Huntington's disease. This season, give the gift of hope through your tax-deductible gift today. With your generosity, we will expand the help we provide today, and the hope we grow for tomorrow. To make your gift today, click the link below! We cannot continue our radical changes within the HD community without you.
Your gift is providing Help for Today and Hope for Tomorrow! We can’t fight this without you. Thank you for your continued support!