3rd Annual Freeze HD

Join us on September 22, 2017

Buy Tickets! Donate To This Event
Ticket Quantity Left Price Each
Title Platinum Sponsor- Includes 40 Tickets to the Event, Name & Logo recognition on all communications including invitation, press releases, collateral, HDSA website, social media outlets, event monitors, stage and red carpet as well as verbal “Thank you” by emcee from event. Available $20,000.00
Gold Sponsor-Includes 20 Tickets to the Event, Name & Logo recognition on all communications including invitation, press releases, collateral, HDSA website, social media outlets, event monitors, stage and red carpet as well as verbal “Thank you” by emcee from event. Available $10,000.00
Silver Sponsor- Includes 10 Tickets to the Event, Name & Logo recognition on all communications including invitation, press releases, collateral, HDSA website, social media outlets, event monitors, stage and red carpet as well as verbal “Thank you” by emcee from event Available $5,000.00
Bronze Sponsor - Includes 6 Tickets to the Event, Name & Logo recognition on all communications including invitation, press releases, collateral, HDSA website, social media outlets, event monitors, stage and red carpet. Available $2,500.00
Bar Sponsor- Includes 4 Tickets to the Event, Name & Logo recognition on event bars, invitation, press releases & marketing collateral. Available $1,000.00
Friend of the Freeze- Includes 2 Tickets to the event, name & logo recognition on invitation, press releases & marketing collateral. Available $500.00
Individual Ticket Available $125.00
Event Details
Where Seven-Degrees
Laguna Beach, CA
Starts 09/22/2017 @ 7:00 PM PDT
Ends 12:00 AM PDT
Check-in Time 7:00 PM to 7:30 PM PDT
Ticket Cutoff 09/22/2017 @ 12:00 PM PDT
Donation Cutoff 12/31/2017 @ 12:00 AM PST
Contact Natalie Carpenter
Phone 949-542-3907
Email Address ncarpenter@hdsa.org

Our Story

Huntington’s disease is a rare genetic neurological disease that deteriorates a person’s physical and mental abilities. Its symptoms are similar to those of Alzheimer’s, ALS, and Parkinson’s, and usually appear between the ages of 30 to 50, worsening over a 10 to 25 year period. Every child of a parent with HD has a 50/50 chance of carrying the faulty gene. There are approximately 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease. Although there are drugs to help treat a few of the many symptoms, there is nothing to stop the progression and no cure. 

3 years ago when I was pregnant with my second daughter, my mother-in-law started showing symptoms of Huntington's disease, and was diagnosed positively. Upon researching the disease that was new to our family, I came to the realization of what this could mean for my husband, his two sisters and especially, my two young girls. I felt heartbroken learning the potential fate of the three people that I love the most. I felt guilt regarding my children and I felt sadness and fear regarding our family's future. Looking back, I think that I cried for almost two weeks straight. 

Thankfully, I met a genetic counselor through one of the Huntington's Disease Society of America's (HDSA) Centers of Excellence and educated myself on everything HD related. With her support and counseling I gained hope and strength and felt understood and supported. I realized then, as I do now, that they are an invaluable resource for support, education and community. I also leaned heavily on HDBuzz, an online site founded by two incredible HD scientists, Dr. Ed Wild and Dr. Jeff Carroll. This team is dedicated to bringing accurate HD laboratory and clinical research news to the Huntington's community in easy to understand terminology. These two resources allowed me to realize that knowledge is power and that there is so much hope.  

At this time we do not know if HD impacts any other members of our family but we are committed to education and research efforts. We are proud and honored to work with the HDSA to provide hope, support, and resources for all of those affected by this disease.

On September 22nd, 2017, our family will be chairing the third annual Freeze HD fundraising event at Seven-Degrees in Laguna Beach, benefiting and supporting the ongoing progress of the Huntington's Disease Society of America and HDBuzz. We would be honored and grateful for you to join us as an event sponsor or attendee during a night filled with live music, drinks, great food and silent auction. 

We hope to see you all there! 

Yours in hope,

Courtney and Matt

 

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