On May 12, 2017 we lost Tony Austin to Huntington's Disease. Tony fought long and hard starting with symptoms at the young age of 26. This is a genetic disease that affects the entire family in so many ways and we need your help to bring awareness to Huntington's Disease and help us find a cure. Would you please consider making a donation not just in memory of Tony but for the future generations of the Austin family?
I started this journey with HDSA in 2013 when my ex-husband was no longer able to come home from the nursing home for visits with his family.He was no longer able to get any enjoyment from birthday or Christmas presents and I felt a strong need to “do something” that would be in honor of him and hopefully lead to a cure one day for my children who have 50% chance of inheriting this terrible disease from their father.
So in 2014, I began planning our first ever event to bring awareness to and support Huntington’s Disease here in South Carolina.Since then our statewide committee of dedicated volunteers has grown to 28 members.This year we have our very own HDSA Center of Excellence where a medical team who specializes in the treatment and care of Huntington’s Disease patients can serve as a “one stop shop” for those in SC who so desperately need it.We are in the process of becoming an HDSA Affiliate and have 9 dedicated board members whose specializations range from social services, to support groups, to youth, to legal rights, to research champions.Countless families have joined us in the fight who once thought that they were all alone in their struggles.
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: • 54 volunteer led Chapters & Affiliates • 41 Centers of Excellence • 65 Social Workers • 160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.
From the bottom of my heart...Thank you for your support!
Kim Austin OsborneSC HDSA Affiliate, Future Co-Chair(803)firstname.lastname@example.org