Hey, I'm Schyler! I'm walking in this year's Hope Walk for a good friend, Katie, who was diagnosed with HD last spring. She lives in Colorado with her hubby, Chris, and their spaze of a dog, Sunny. Since I moved away from CO and can't participate in a Hope Walk in the Rockies, I've decided to raise some money and walk in Boone, North Carolina. Thanks for checking out my page and reading more about how you can help HDSA achieve their mission to improve the lives of everyone with Huntington's disease and their loved ones. Read on for more deets of what HDSA is doing:
The Huntington’s Disease Society of America is the premier not-for-profit organization dedicated to improving the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their family.
Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities during their prime working years and has no cure.
HD is known as the quintessential family disease because every child of a parent with HD has a 50/50 chance of carrying the faulty gene. Today, there are 30,000 symptomatic Americans and more than 200,000 at-risk of inheriting the disease.
The Huntington’s Disease Society of America is the premier nonprofit organization dedicated to improving the lives of everyone affected by HD. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today and hope for tomorrow for people with HD and their families.
Across the United States, HDSA currently supports: •54 volunteer led Chapters & Affiliates •41 Centers of Excellence •65 Social Workers •160 Support Groups
To learn more about Huntington’s disease and the work of the Huntington’s Disease Society of America, visit www.hdsa.org or call 1-800-345-HDSA.
Please register to walk with me and help make a difference! If you cannot walk with me, please consider making a donation to my personal fundraising page by clicking the ‘Donate’ button at the top of this page.